Simon Harris (Wicklow, Fine Gael)
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When setting out a drugs budget, for obvious reasons we do not outline at the start of the year all the drugs we will provide because new drugs come on stream, negotiations go on etc. I hope we can make Spinraza available. The legal responsibility lies with the HSE. I know many parents are very anxious and stressed. While I do not have a note on it, I understand the company has now submitted a revised offer to the HSE that is being considered. I hope we will have news on that shortly. I would be happy to come back to the Deputy on that in writing today or tomorrow.