Oireachtas Joint and Select Committees

Wednesday, 21 November 2018

Joint Oireachtas Committee on Health

Evaluating Orphan Drugs: Discussion (Resumed)

9:00 am

Photo of Stephen DonnellyStephen Donnelly (Wicklow, Fianna Fail)
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That is helpful. If we assume the best and final offer was made by the pharmaceutical company, although that can change, can the HSE not give the parents a broad outline? It sounds as though the negotiations have concluded and it is now a question for the State. Surely we should then be able to indicate how long the State will take to make these decisions.