Oireachtas Joint and Select Committees

Wednesday, 21 November 2018

Joint Oireachtas Committee on Health

Evaluating Orphan Drugs: Discussion (Resumed)

9:00 am

Photo of John BrassilJohn Brassil (Kerry, Fianna Fail)
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It can be done. Orkambi was not reimbursed because the NCPE suddenly saw the light, however. Massive political pressure and patient-centred demonstration and focus made officials realise they could no longer ignore it or make the decisions they were making without being challenged. When they were challenged, they made the decision. I do not know if I had any question there; it was more of a statement. I would appreciate if the witnesses' organisations could look at the Bill I am-----