Oireachtas Joint and Select Committees

Wednesday, 21 November 2018

Joint Oireachtas Committee on Health

Evaluating Orphan Drugs: Discussion (Resumed)

9:00 am

Photo of Louise O'ReillyLouise O'Reilly (Dublin Fingal, Sinn Fein)
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The challenge is to bring the voices in and to recognise that when the answer is "No" it is because the drug is not going to work and not because the system is just giving a blanket "No". Patients feel they are not involved in the process.