Oireachtas Joint and Select Committees
Wednesday, 21 November 2018
Joint Oireachtas Committee on Health
Evaluating Orphan Drugs: Discussion (Resumed)
9:00 am
Ms Vicky McGrath:
I will address the issue of rare diseases and the technology review committee. I would caution against the use of the phrase "decision-making" because we do not want people to believe that the group makes decisions on reimbursement. It does not. It is making a decision about a recommendation for reimbursement. We need to be very clear that the committee is not the decision-maker.