Oireachtas Joint and Select Committees
Wednesday, 12 July 2017
Joint Oireachtas Committee on Health
Funding of Orphan Drugs: Discussion
9:00 am
Professor Gerry McElvaney:
I did not answer one question about companies discontinuing drugs. It does happen. When conducting Alpha-1 trials in Ireland, we insist on a patient continuing on the drug until a decision is made on reimbursement. That is the very least companies should do. The problem for us is that the issue of reimbursement drags on so long.