Ms Geraldine Kelly:

I would like to make a point on that. In the context of the NCPE seeking additional resources, there is talk about an increase of nine staff. Those nine people will do work that is already being done elsewhere so it does not make sense. We should put the funding somewhere else, into something that is going to help the patients that are suffering from muscular dystrophy or alpha-1. There is a total lack of transparency on where their money is being spent by both the NCPE and the HSE. It is not obvious to any of us where the money is going. I think that is critical in all of this. Transparency is not there and that must be looked at across this whole process.