Mr. Tom Reddy:

One of the difficulties is that there is no themed response to the problems our daughters have experienced. We all acted individually until we became aware that this group existed. Every parent has the same story when they get in contact with the group and join it. They thought they had been operating alone. They went from doctor to specialists and were working in a twilight zone by themselves, thinking that nobody else was affected by it. Since we have been able to go public, we have found that more and more parents are identifying with members of the group. They find that it is almost a template reaction, in a sense, as to what they have had to go through concerning their daughters' symptoms. The other difficulty in people identifying with the group is that sometimes the symptoms take a long time or there could be different symptoms before they actually present. It could be a matter of weeks, months or years.