Ms Ann Mooney:

On the question of whether GPs and the medical profession generally are more aware, the first port of call is the GP but if one presents with a variety of symptoms it is difficult to pinpoint a specific disorder. Of necessity, one must make several visits before a diagnosis can be made. We have described fibromyalgia as a neurological problem that comes from over sensitisation of the muscles and extremities. Technically, therefore, we should be seen by a neurologist as opposed to a rheumatologist. All of us are aware of the pressures under which the limited number of neurologists in this country must work. People with fibromyalgia need to be very lucky to have a GP with knowledge and awareness of the disorder to be referred to a rheumatologist who can make the official diagnosis.

There is no cure for the syndrome, which involves a series of varying symptoms and ailments, but drug medication should not be condemned because it is very effective for many people. An individual may get involved in a fibromyalgia group when he or she is in a bad way and after gradually getting better may no longer feel the need to attend meetings. In terms of support, however, one needs a physiotherapist who has specialist training. If one has the money, it is technically cheaper to seek out reflexology, cognitive behaviour therapy or even just massage. The peer support offered through support groups is also important. I do not know how we can get this across to the IMO apart from relying on our GPs and specialist consultants.