Oireachtas Joint and Select Committees

Wednesday, 24 April 2024

Joint Oireachtas Committee on Health

Health Services for Persons with Lung Fibrosis: Discussion

Ms Maureen O'Donnell:

As the Deputy has said, there is no patient registry today so we do not know how many people have lung fibrosis, where they are, or what their condition is. As I said in my opening statement, you cannot manage what you cannot measure. Ms Cassidy can talk more about what that would provide for us.

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