David Cullinane (Waterford, Sinn Fein) | Oireachtas source

I welcome the representatives from the Irish Lung Fibrosis Association. I thank them for their advocacy. I know they are regular visitors to Leinster House and have correctly been lobbying all of us in standing up for patients in this area. I am looking at the four main asks in the opening statement. None of them are asks that should not be delivered in my view. I will start with the most basic one. This is a source of frustration to members of the committee because we see it in lots of different areas, which is that we do not have a patient registry. How important would a patient registry be from the witnesses' perspective and what value would it add?