Ms Deirdre Callis:

Our counselling grant is available to any family member. When patients are accessing the acute setting, that is extended to families as well. A couple of years ago, Debra introduced the sibling appreciation grant whereby the person living with EB would nominate his or her sibling, creating the space to acknowledge what it is to be the sibling of somebody with a chronic illness. It is really important and is one of the little things that we do every couple of years that is really embraced by families. It highlights the role that siblings play in a family living with EB. As I said, we extend our counselling grants to all family members.