Martin Conway (Fine Gael) | Oireachtas source

I concur with what my colleagues have said. I welcome the witnesses and thank them for being here. I first came across this issue five or six years ago and have always taken an interest in it. It is great that there have been some developments in the US, although they will probably take some time to reach us here, which is always an issue.

Are any supports being provided to the siblings of children with EB? As is often the case when somebody in a family has a disability or an illness, siblings can be affected in ways that are not known or understood. Given the nature of EB and the obvious pain it causes, it must surely have an effect on siblings.