Ms Deirdre Callis:

That is where we are going and what we want. We want people living with EB to have full access to a medical card regardless of means. That is one of our hopes and, right now, those who are not living with the more severe type of EB and are working and whose household income is over a certain amount are disqualified from accessing a medical card. That is the current position. Our hope is that we will move in to the long-term illness category, which would give access to a medical card, equipment and medication, or that we get discretionary access for people who are living with EB, which is a long-term illness. The condition does not go away and our hope is that people will receive a letter stating that because they have EB, they can have discretionary access to medication and the bandages that are available on the medical card.