Oireachtas Joint and Select Committees
Wednesday, 28 February 2024
Joint Oireachtas Committee on Health
Health Services for People with Epidermolysis Bullosa: Discussion
Bernard Durkan (Kildare North, Fine Gael) | Oireachtas source
I thank the witnesses for giving us the benefit of their advice this morning. On the condition itself, and in an attempt to alleviate the pain, suffering and distress to the patients and their families, to what extent has it been deemed appropriate to have a full medical card in each case because of the ongoing nature of the treatment and the requirement above and beyond what would be regarded as normal, keeping in mind that patients with cancer or life-threatening illnesses have always been deemed to be entitled to avail of a full medical card?
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