Oireachtas Joint and Select Committees

Wednesday, 28 February 2024

Joint Oireachtas Committee on Health

Health Services for People with Epidermolysis Bullosa: Discussion

Photo of Pauline TullyPauline Tully (Cavan-Monaghan, Sinn Fein) | Oireachtas source

The witnesses are very welcome to the committee. I commend Debra as a charity because I know the wonderful work it does for people with EB and their families. It is tremendous.

I have a follow-on question from what Deputy Burke asked about the bandage scheme. There have been requests and I know one of Debra's asks is the national bandage scheme that is operated in other countries. I think Australia has one. Are we getting anywhere closer to seeing that being realised? I know from talking to people with EB that sometimes the bandages they receive are not the right size, are not in sufficient quantity, or they are late coming to them and it can cause severe problems. If the correct bandages are not available, there is a risk of infection. Is that being considered?

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