Oireachtas Joint and Select Committees

Wednesday, 28 February 2024

Joint Oireachtas Committee on Health

Health Services for People with Epidermolysis Bullosa: Discussion

Dr. Sin?ad Hickey:

There is no cure or treatments for EB, so it is very much a management of the condition at the moment. We have a submission from a company with the NCP at the moment to reimburse a drug to help with wound healing. We hope that will be successful. There is a gene therapy that has been approved by the FDA over in the US. It is a topical treatment to help with wound healing externally and it is showing very positive results. The company has just submitted to the EMA as well, so we hope to see that. Again, however, it will be a few years off and in the meantime we need to-----

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