Ms Deirdre Callis:

The only management of it now is the medical management. There is a lot of research done on the biomedical management of EB, so we follow those care pathways. Regarding a cure, Dr. Hickey is probably best to talk about that. There are gene therapies available. Right now, they are just available in America but we are hopeful that they will be available in Ireland in the next few years. Right now, it is psychology support and the medical management of it that is needed.