Oireachtas Joint and Select Committees

Wednesday, 28 June 2023

Joint Oireachtas Committee on Health

Services for the Treatment of Endometriosis: Endometriosis Association of Ireland

Photo of Neasa HouriganNeasa Hourigan (Dublin Central, Green Party) | Oireachtas source

I want to ask about data but, as Ms Darcy mentioned research, I will note that I was referencing the Australian version from 2018. I came across a significant announcement from those involved in the research there from June of this year so that strategy is obviously producing research outcomes as a result of this work being funded. I want to go back to data. I feel like I am always the person who asks about data. I would be completely unsurprised to hear that we do not collate or collect the right type of data around endometriosis. It strikes me that this is a chronic condition and that people live with it. We do not necessarily do chronic disease management for people with complex issues well. I know other health systems have treatment plans for people with chronic illnesses. One of the things that is happening is the development of registers for people who have particular conditions. Is that something the EAI has looked at? Has it looked at data being fed into a register so that there could be a shortcut for those accessing treatment?

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