Ms Ilanna Darcy:

Yes. We are talking about the number of supra-regional centres for the complex treatments but at the start we were asked about how many people suffer from endometriosis.

We are guessing because even we do not know. If we do not know how many people suffer, how do we know how many complex cases there are and whether we have the right infrastructure to support them? It is a large unknown. We are developing a framework without the proper level of data. As a charity, we are very small but we hope to expand. As I have mentioned, we are taking on somebody part-time, which will help us in that. If we could expand our reach within the community, we could potentially start collecting that data, which could then be used to drive these types of strategies and be useful on the research side of things. Obviously, we need some sort of help in growing the charity. It is very small and we need help in that regard but that is our ultimate aim. The patient voice would then be at the centre of the strategy rather than people guessing, assuming and hoping for the best.