Oireachtas Joint and Select Committees
Wednesday, 22 June 2022
Joint Oireachtas Committee on Health
Rare Diseases: Discussion (Resumed)
Seán Crowe (Dublin South West, Sinn Fein) | Oireachtas source
Is more attention given to rare diseases among clinicians and those involved in this area? Years ago, it used to be the case that everyone wanted to be involved because it is unusual, and because there are so few of them. Is that the case anymore? Is it just a case that we are discovering rare diseases all the time? I would think that someone who has an expertise in rare diseases would want to be involved. When you talk to families, however, that idea does not necessarily flow through.
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