Oireachtas Joint and Select Committees

Wednesday, 22 June 2022

Joint Oireachtas Committee on Health

Rare Diseases: Discussion (Resumed)

Dr. Ciara Martin:

Once our patients are identified, if clinical trials are ongoing across Europe or internationally, selected patients may be entered into those clinical trials as part of our research project. That will help to inform, for example, a particular medication or treatment option that a patient would receive. It is hoped that, with the ERNs, we will be able to co-ordinate that across Europe and that we will be able to give our own families and patients access to participation, if appropriate, in those clinical trials. That would then be a matter for the consultant and clinician who is looking after the patient, as well as the patient, to work out. The NRDO would help to co-ordinate that too. Does that answer the Chairman's question?

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