Oireachtas Joint and Select Committees
Wednesday, 22 June 2022
Joint Oireachtas Committee on Health
Rare Diseases: Discussion (Resumed)
Colm Burke (Cork North Central, Fine Gael) | Oireachtas source
My understanding is there are 35 families in the country. They are writing to us and lobbying us very much on this drug being made available and it is not being made available. I ask that it be reviewed at the earliest possible date.
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