Oireachtas Joint and Select Committees

Wednesday, 22 June 2022

Joint Oireachtas Committee on Health

Rare Diseases: Discussion (Resumed)

Photo of Colm BurkeColm Burke (Cork North Central, Fine Gael) | Oireachtas source

My understanding is there are 35 families in the country. They are writing to us and lobbying us very much on this drug being made available and it is not being made available. I ask that it be reviewed at the earliest possible date.

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