Oireachtas Joint and Select Committees

Wednesday, 22 June 2022

Joint Oireachtas Committee on Health

Rare Diseases: Discussion (Resumed)

Mr. Liam Woods:

I will take the last part first. The timing on the national strategy is quarter 3 or early quarter 4 this year. We hope that will be subject to consideration for the 2023 Estimates. I entirely agree with the broad premise of the Deputy's statement that we need to build up our resource in terms of capacity. The national doctors training programme, NDTP, did a review in 2019 of the availability of doctors in this area and the likely need. At that time it was clear we would need to grow by a factor of four. That is before referencing counselling, therapies and other supports. We expect the strategy will bring forward conclusions in that area before the end of this year. There is a group in place, as the Deputy referenced, to drive that.

On the particulars of the CF drug, we will respond in writing, unless one of my colleagues can make a comment on that.

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