Oireachtas Joint and Select Committees

Wednesday, 21 November 2018

Joint Oireachtas Committee on Health

Evaluating Orphan Drugs: Discussion (Resumed)

9:00 am

Professor Michael Barry:

I take the Deputy's point, but we were steadfast. We never believed that Orkambi was value for money, nor do we believe that now. Our position is unchanged. However, there is a real world out there, so negotiations take place and the drug is made available. That is how our reports are used. We do the best we can and Mr. Flanagan and his group do their best in negotiations and get drugs available.

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