Oireachtas Joint and Select Committees

Wednesday, 21 November 2018

Joint Oireachtas Committee on Health

Evaluating Orphan Drugs: Discussion (Resumed)

9:00 am

Photo of John BrassilJohn Brassil (Kerry, Fianna Fail) | Oireachtas source

On Orkambi, I must give credit where it is due. Vertex are now looking to have the HSE model replicated in other countries, including Sweden, because they regard it as a good model, which has been successful and delivered value for money. It has been agreed that down the line, iterations of Orkambi will become available. However, was that a result of the unending political pressure and the demonstrations that went with it or the HSE process? I suspect it is a combination of the two but not every group has the support of the people in such as with Orkambi. We are dealing with five or eight families who do not have that political clout or do not have the ability to protest. I would like them to get the same treatment without the controversy.

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