Oireachtas Joint and Select Committees
Wednesday, 21 November 2018
Joint Oireachtas Committee on Health
Evaluating Orphan Drugs: Discussion (Resumed)
9:00 am
Rose Conway Walsh (Sinn Fein) | Oireachtas source
With regard to the impact of delays in the BeNeLuxA countries, we know the situation regarding Spinraza in all of the BeNeLuxA countries. Surely we can use that as a lever.
The children are being admitted to ICU. Even taking out the inhumane aspect and the distress caused, the additional costs are building up in trying to-----
No comments