Oireachtas Joint and Select Committees

Wednesday, 21 November 2018

Joint Oireachtas Committee on Health

Evaluating Orphan Drugs: Discussion (Resumed)

9:00 am

Mr. Philip Watt:

I went to the annual conference concerning children with Duchenne muscular dystrophy. They have a window of two or three years and if they do not get the medication, they will go into a wheelchair straight away. They will not be able to walk. Those medications are broadly available in the rest of Europe. Cost seems to be the reason why they are not being brought-----

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