Mr. Philip Watt:

The conditions are so diverse. The Senator's point is correct. In some cases, more visibility is needed. To get back to the point about epidermolysis bullosa, EB, it is ridiculous that people have to pay for bandages when that is a core part of their medical treatment. There is a kind of grey area between what is a drug or medication and what is not which definitely needs to be resolved. Moreover, without a universal healthcare system, we just have the long-term illness scheme which was introduced in 1971. That names about 43 conditions for which there is basically a universal healthcare system. We are very lucky that cystic fibrosis, CF, is one of them. However, many other conditions, including many rare diseases, are not named in the scheme but should be equivalents. I do not advocate getting rid of the scheme but it should be expanded to cover many more conditions until we have a universal healthcare system. That is crucial as well.