Oireachtas Joint and Select Committees
Wednesday, 21 November 2018
Joint Oireachtas Committee on Health
Evaluating Orphan Drugs: Discussion (Resumed)
9:00 am
Colm Burke (Fine Gael) | Oireachtas source
I wish to make a final point about the supports that should be made available to patients with rare diseases. they have no-one to turn to in many cases. Could there be a better structure for supporting people who could be provided with care but who do not know how to access it? Does more need to be done to provide information to people who are identified as having rare diseases?
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