Oireachtas Joint and Select Committees

Wednesday, 21 November 2018

Joint Oireachtas Committee on Health

Evaluating Orphan Drugs: Discussion (Resumed)

9:00 am

Photo of Colm BurkeColm Burke (Fine Gael) | Oireachtas source

I wish to make a final point about the supports that should be made available to patients with rare diseases. they have no-one to turn to in many cases. Could there be a better structure for supporting people who could be provided with care but who do not know how to access it? Does more need to be done to provide information to people who are identified as having rare diseases?

Comments

No comments

Log in or join to post a public comment.