Oireachtas Joint and Select Committees

Wednesday, 8 November 2017

Joint Oireachtas Committee on Health

Evaluating Orphan Drugs: Discussion (Resumed)

9:00 am

Mr. John Hennessy:

We did clarify it earlier. First, we appreciate the difficulty those patients are in but we do not accept that it is appropriate for a company to make a unilateral decision to discontinue a programme like that and merely assume that is the responsibility of the HSE to step in.

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