Oireachtas Joint and Select Committees

Wednesday, 8 November 2017

Joint Oireachtas Committee on Health

Evaluating Orphan Drugs: Discussion (Resumed)

9:00 am

Photo of Colm BurkeColm Burke (Fine Gael) | Oireachtas source

The problem is that they are looking for clarity at this stage. They want to know between now and Christmas whether they are going to find out on the news or in the newspaper if they will continue to have the drug available to them the following day, week or month. They are now in that dilemma. That is the difficulty we have to deal with as public representatives because people are getting in contact with us every day. They are in an insecure situation and no clarification is forthcoming from anyone. That is the issue that must be clarified.

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