Oireachtas Joint and Select Committees
Wednesday, 8 November 2017
Joint Oireachtas Committee on Health
Evaluating Orphan Drugs: Discussion (Resumed)
9:00 am
Colm Burke (Fine Gael) | Oireachtas source
The problem is that they are looking for clarity at this stage. They want to know between now and Christmas whether they are going to find out on the news or in the newspaper if they will continue to have the drug available to them the following day, week or month. They are now in that dilemma. That is the difficulty we have to deal with as public representatives because people are getting in contact with us every day. They are in an insecure situation and no clarification is forthcoming from anyone. That is the issue that must be clarified.
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