Ciara Conway (Waterford, Labour) | Oireachtas source

I thank the witnesses for their attendance and for facilitating such an informative discussion. I note rare disease day is coming up at the end of February. The joint committee spoke about it at one of its earlier meetings and we hope to hold a meeting to mark that day on 26 February. However, given the fact that Huntingdon's disease is a rare disease, has very little support and has no dedicated service, the joint committee may make some recommendations to the Minister on foot of this presentation. We may present it to him, in consideration of rare disease day in February, to give it some status and to mark it out.