Oireachtas Joint and Select Committees

Thursday, 15 January 2015

Joint Oireachtas Committee on Health and Children

Coping with Challenges of Huntington's Disease: Discussion

9:30 am

Dr. Jennifer Hoblyn:

Yes, and 70% of people with family history of frontal lobe dementia will get tested and get results. There is a huge stigma attached to Huntington's disease. If one applies for insurance or a mortgage, one is asked whether one or any member of one's family has Huntington's disease, Parkinson's disease or multiple sclerosis, MS. As there is a huge stigma, people do not wish to come forward.

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