Dr. Niall Pender:

There are no formal structured services. We have great clinicians doing work in their general clinics. Patients will turn up to neurology and psychiatry clinics to be seen with other patients. We do not, however, have a specialist dedicated Huntington’s disease clinic like we would have for motor neurone disease. Beaumont Hospital has put together a cognitive behavioural clinic to manage the behavioural cognitive piece with colleagues in psychiatry and neurology. Huntington’s patients need a more focused, dedicated team-based approach with clinicians who can develop expertise in treating it, however. There is a will and enthusiasm to set up such teams but there is no structure in place to facilitate that.