Oireachtas Joint and Select Committees

Thursday, 15 January 2015

Joint Oireachtas Committee on Health and Children

Coping with Challenges of Huntington's Disease: Discussion

9:30 am

Ms Patricia Towey:

Yes, we do have a national office at the Carmichael Centre for Voluntary Groups which is a shared-service facility. Our family support officer tries to do outreach work in the greater Dublin area. There is a drop-in centre for people if they want to call to the office for information. We provide regional counselling and an annual respite weekend which is a good opportunity for family members to meet each other in a more informal environment to share coping strategies. We provide counselling for people diagnosed with the disease or going through testing for it. This is sourced through accredited psychotherapists.

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