Oireachtas Joint and Select Committees

Thursday, 15 January 2015

Joint Oireachtas Committee on Health and Children

Coping with Challenges of Huntington's Disease: Discussion

9:30 am

Photo of John CrownJohn Crown (Independent) | Oireachtas source

Is there a rough sense of how many patients there are in the entirely dependent stage of their management and where institutional care would be a reasonable option for them if home care were not available? Society should make the commitment to ensure someone was not asked to look after a family member without State support. Many of the carers in question may have other dependants at home too. What do we need to do to reduce this burden?

Where are we at with prenatal testing for Huntington’s disease?

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