Dr. Jennifer Hoblyn:

The biggest problem is there is no direct funding stream for us coming from disability services or long-stay or acute psychiatric services. There is no taking patients from acute medical beds where they have been languishing for months on end. With what is going on in our hospitals now, it would be much better if there were a central co-ordination of services for people with Huntington’s disease rather than their families having to fight for funding and so forth. It would be better to start the work earlier, get people with Huntington’s into care services and connected before they need long-term care.