Stephen Donnelly (Wicklow, Fianna Fail)
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In December 2023, I announced the establishment of the National Rare Disease Steering Group. Since its establishment the Group has convened twice and has begun the process of developing a new Rare Disease Strategy that sets out the vision for Rare Disease services in Ireland and the actions required to achieve this. An implementation plan is expected to be developed by the Steering Group and will form part of this new Strategy. It is anticipated that the new strategy will be launched in Autumn 2024.