Written answers
Wednesday, 14 September 2022
Department of Health
Medicinal Products
Joe Carey (Clare, Fine Gael)
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502. To ask the Minister for Health if he will reconsider his position and agree to meet with an organisation (details supplied) in relation to the provision of kaftrio to a cohort of 35 children; and if he will make a statement on the matter. [44489/22]
Stephen Donnelly (Wicklow, Fianna Fail)
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Since my appointment, I have at all times prioritised the needs of patients and, at every opportunity, made myself available to meet with patients and patient groups.
Kaftrio has been a life changing drug for Cystic Fibrosis sufferers, and I want to see it made available to everyone who needs it.
The HSE has statutory responsibility for decisions on pricing and reimbursement of medicines under the community drugs schemes, in accordance with the Health (Pricing and Supply of Medical Goods) Act 2013.
I have been advised by the HSE that engagement with Vertex Pharmaceuticals is ongoing, which I hope can be brought to a satisfactory conclusion for everyone.
My office has been in contact with CFI in order to arrange a meeting for me with their representatives.
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