Written answers
Wednesday, 2 April 2008
Department of Health and Children
Health Services
9:00 pm
Bernard Allen (Cork North Central, Fine Gael)
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Question 345: To ask the Minister for Health and Children the reason she has refused to provide direct funding for clinical trials into muscular dystrophy treatment in the UK that could involve Irish patients. [11769/08]
Jimmy Devins (Sligo-North Leitrim, Fianna Fail)
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I met with representatives of Muscular Dystrophy Ireland in October 2007 and discussed the issue raised by the Deputy.
I subsequently wrote to Mr Joe Mooney, Director of Muscular Dystrophy Ireland on 7th February 2008 outlining the position in relation to funding research trials into Duchenne Muscular Dystrophy in the United Kingdom . There is no mechanism or budget for Government funding of UK health research . My Department cannot directly fund UK or Irish research and recommends that the researchers apply to the Health Research Board.
Muscular Dystrophy Ireland held the first information day on "Advances in the Care of Duchenne Muscular Dystrophy" for families and doctors on Sunday 2nd March last. I was pleased to be able to support Muscular Dystrophy Ireland by providing over â¬9,000 towards the costs associated with the information day.
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