Frank Feighan (Sligo-Leitrim, Fine Gael) | Oireachtas source

I fully appreciate the severity of cystic fibrosis and acknowledge the fears and frustrations of families affected by the situation. I also acknowledge the Senator's bona fides in regard to this difficult matter. The HSE will continue to engage with Vertex and I am hopeful this situation can be brought to a satisfactory conclusion for everyone. She stated that a price has been agreed with the Department and I will convey that to officials because my notes, which were provided by the Department, suggest otherwise. Obviously, there is a difference of opinion and I will try to clarify that as quickly as possible.

The HSE has statutory responsibility for medicine pricing and reimbursement decisions, as given to it under the Health (Pricing and Supply of Medical Goods) Act 2013. It is making every effort to fulfil its responsibility and has indicated that progress on this issue will require a similar effort from Vertex. The Senator has brought some issues and information to the table, and I will bring them back to the Department.