Wednesday, 16 December 2020
Nithe i dtosach suíonna - Commencement Matters
I have listened closely to what the Minister of State has said and I accept that last February and July, a decision was made in the negative on patisiran but things have changed rapidly. The fact that an extra €50 million was included in the budget in order to treat rare diseases is important and an absolute game changer. I accept, of course, that there has to be criteria for the spending of public money on medicines. However, the 30 people who we are speaking about are lucky that we know that there is a drug that can absolutely help to support them with their difficult symptoms. That is hugely important. I accept that the whole reality of trying to negotiate with commercial pharmaceutical firms is something that we need to do. We need to have that negotiation. I hope that the Minister of State will intervene to ensure that those 30 people, including my friend Pat, will have the opportunity to access patisiran in early 2021.