Seanad debates

Wednesday, 3 April 2019

Nithe i dtosach suíonna - Commencement Matters

Organ Donation

10:30 am

Photo of Mark DalyMark Daly (Fianna Fail) | Oireachtas source

Needless to say, I am disappointed that the Minister of Health is not here to discuss the issues of organ donation and organ donor awareness. The Minister for Transport, Tourism and Sport, Deputy Ross, was also unable to come to take this matter. It is a matter of life and death for some. The specific issue I raised last year has not been advanced by either Minister. I thank Mr. Mark Murphy of the Irish Kidney Association for coming to listen to the response that will be given by the Department of Health, if not the Minister.

On 13 March I asked for the Minister for Transport, Tourism and Sport to come to the House in order that we could find out why he had not signed the statutory instrument to allow the HSE access to the driving licence registry to see the names of people who had indicated on their driving licence that they would like to be an organ donor. He cited two reasons on that occasion, one of which was related to the issue of data protection under EU law, while the other was Brexit. He was too busy in dealing with it. In May 2018 we informed him that, according to research conducted by the Oireachtas Library and Research Service, he was able to share the data. The Schedule to the legislation could be amended to allow the Minister for Transport, Tourism and Sport, under section 63 of the Finance Act, to make a regulation to make the database available. When the Minister, Deputy Ross, told us that he was not able to share the information because of EU data protection law, he was not aware that the previous Minister, Deputy Donohoe, had shared data in the driving licence registry with everybody, from car manufacturers to the Health and Safety Authority, the Motor Insurance Bureau of Ireland, eFlow, a private company, the Road Safety Authority, the National Transport Authority, the National Consumer Agency and the local authorities. People approved by the Department of Transport, Tourism and Sport, commercial services and the office of the provost marshal of the military police have access to it. Tribunals of inquiry also have access to it, as do the Office of Official Assignees in Bankruptcy and the Courts Service, yet the HSE and the national transplant authority do not.We asked the Minister to come in again and he has not shown up today but he replied on 22 March that it is not a data protection issue and the issue is the Department of Health has not requested that the national organ transplantation unit have access to information from the driver's licence registry. A year ago, the Minister for Transport, Tourism and Sport, said that he would ask the HSE to give me its views and see if progress can be made in a constructive way. Has the Minister for Transport, Tourism and Sport engaged with the HSE on this issue and when will he be asked to sign the statutory instrument that will allow the HSE to have access to the drivers licence registry so that people will know if their loved ones want to be an organ donor?

It should be borne in mind that figures supplied by the Irish Kidney Association to me show that when asked by a professional in organ co-ordination and transplantation if they would consider donating their loved one's organs, the figure internationally is approximately 52%. When supplied with information that their loved one wanted to be an organ donor, the organ donor rate in families increases to 92%. The only place we currently have a registry is in National Driver Licence Service. I have outlined all of the other organisations that have access to this registry. The Minister for Transport, Tourism and Sport is clearly blaming the Minister for Health and his Department by saying that they quite simply have not asked for this information.

Will the Department of Health ask the Minister for Transport, Tourism and Sport for this information in order that it will be available to healthcare professionals, organ donor co-ordinators and the families of the donors so that they can make an informed decision when considering to donate organs?

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