Seanad debates

Wednesday, 12 December 2018

Commencement Matters

Rare Diseases

10:30 am

Photo of Jim DalyJim Daly (Cork South West, Fine Gael) | Oireachtas source

I thank the Senator again. I appreciate her frustration in not getting the answers she was looking for. I suppose what she is looking for more than answers is a more comprehensive set of solutions. I will undertake to go back to the HSE, raise the Senator's concern about the upright MRI scan and check whether there are any proposals in this regard or whether it is on the agenda to purchase the equipment. I will also query with the HSE specialist training for Ehlers-Danlos syndrome, particularly to see whether the HSE has a plan to have someone upskilled in treatment of the condition in order that we can accurately diagnose and treat it here as opposed to sending people abroad. I will ask the HSE to revert directly to the Senator with its responses to these queries.

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