Seanad debates
Wednesday, 11 July 2018
Order of Business
10:30 am
Rose Conway Walsh (Sinn Fein) | Oireachtas source
I need to talk very briefly about what is happening in respect of Translarna. I have spoken about it several times in the House. I welcome the fact that the drug company PTC has withdrawn its legal charges. There is now an opportunity for the HSE to get back into negotiations on the price, which it did not do in the first place, and to look at the conditions around the expert evidence available at the time. I want the Minister for Health to outline the timeline and process involved in the approval of Translarna and to take responsibility for it. It is not good enough for the Minister for Health to abdicate responsibility while there are five children in this country waiting for a drug that will enable them to continue walking.
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