Seanad debates

Thursday, 26 March 2015

Children and Family Relationships Bill 2015: Committee Stage

 

10:30 am

Photo of John CrownJohn Crown (Independent) | Oireachtas source

With respect, I understand the intention. My concern is in relation to the implementation. These data are not anonymised, such that if the pregnancy does not occur or proceed successfully, there is no child who has a right to those data. I am not sure why data, which are essentially maternal data or data of the couple, are being collected when there is no possible benefit to anybody else because no child has been conceived or delivered as a result of the procedure in the first instance.

In response to Senator Norris, these are not anonymised research data. These are actual patient records.

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