Thomas Byrne (Fianna Fail) | Oireachtas source

His name is already on the public record. He said that he would urge the HSE to consider providing to this young man the correct treatment before he reaches catastrophic thrombosis, which would be catastrophic. I will not name his consultant haematologists but will quote them. His consultant said that given the overwhelming evidence that eculizumab is the only effective therapy for PHN, and given that the HSE already funds eculizumab therapy for ten patients, they believe there is a very strong moral and ethical argument that the HSE should agree to fund eculizumab.

I ask the Minister, his officials, the relevant body and the HSE to please reconsider the decision. Please give this man, and the other person of whom I know affected by this, the chance of life. Please do not tell him and his wife, Aileen, that there is no hope for them.