Seanad debates

Tuesday, 27 May 2014

Adjournment Matters

Treatment of Rare Diseases

8:00 pm

Photo of John PerryJohn Perry (Sligo-North Leitrim, Fine Gael) | Oireachtas source

I acknowledge the expertise of Senator Crown in this area and assure him that the Minister for Health will take full account of the issue he has raised. As stated earlier, the HSE has established a national clinical programme for rare diseases and a national clinical lead has been appointed. I suggest that the aforementioned appointee should speak to Senator Crown about specialisation within the hospital network, particularly in the context of the effects of vasculitis diseases on so many different areas of health. This must be addressed through the centres of excellence to which Senator Crown alluded.

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