Seanad debates
Tuesday, 11 February 2014
Adjournment Matters
Rare Diseases Strategy Implementation
6:40 pm
Colm Burke (Fine Gael) | Oireachtas source
I apologise for being late. I was awaiting a reply to a question at the health committee. This issue is about the provision of a national office for rare diseases. Much work is being done in this area and I was asked to raise this issue in view of the fact that there would be a national conference in Belfast at the end of the month and that it would be helpful if we could have some idea when it was proposed to put this office in place. It is accepted that there is a need for it and that it is the long-term plan. We await the long-term plan and I want to know when it will be announced. My Adjournment matter sets out clearly what I seek and I wonder if I could have clarification.
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